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PROJECT 3000
Leber’s Congenital Amaurosis (LCA)
Ophthalmologists Needed to Identify Patients
The Ophthalmologist’s Role
The major goal of Project 3000 is to get in contact with all 3,000 individuals affected with Leber’s Congenital Amaurosis (LCA) in the United States and offer them state-of-the-art genetic testing to identify the specific genetic cause of their disease. Help is needed from ophthalmologists throughout the country to identify these individuals. The Project 3000 team believes that the patients’ physician must remain at the center of their medical care. Thus, all individuals interested in participating in the project will be encouraged to do so through their existing physician.
How to Refer a Patient
Please refer any past, current, and future LCA patients to the Project 3000team at (866) 495-2873. You may also contact Heather Scherber of the 1st Touch Foundation at hscherber@1sttouch.org or (916) 212-0312.
The Project 3000 Story
Leber’s Congenital Amaurosis (LCA) is a rare blinding eye disease that affects one in 100,000 children. Project 3000 was launched whtn Chicago Cubs first baseman Derrek Lee and Boston Celtics CEO and co-owner Wyc Grousbeck, each of whom has a child with LCA, sought a partnership with The University of Iowa to advance scientific understanding of the disease and work toward a cure. The University of Iowa is an international leader in vision research and care, with particular stregth in inherited eye diseases.